EPIDERMOLYSIS BULLOSA

daniel's case

When you see Daniel, you don’t see a typical 23-yr-old who takes joy in life, you see a young boy a soul burdened by the challenges he is facing.

Since he was a baby, he received a very unsettling diagnosis: Epidermolysis bullosa, a cruel genetical disease that causes the skin to blister easily, leaving the entire body wounded and requiring constant care. “In my 23 years, I've always held out little hope that a cure would be found. But doctors still define this disease the same way they did 23 years ago - incurable.”, he sadly explains.

Daniel’s daily ritual includes treatments, bandages and special creams, the cost of which exceed  1.000 EUR/month. In summer, the disease intensifies and the cost increases. For some, it is a small amount easily spent on a holiday, for Daniel this amount brings another month of comfort and manageable pain. We hope that with our small support, we will be able to bring a smile on Daniel’s face.